If you missed the first part of this article, you can find it here; if you missed my recent article, Ten Facts About Lyme Everyone Should Know, you’ll find it here.
LYME RESOURCES FOR PATIENTS continued….
BOOKS
CURE UNKNOWN: Inside the Lyme Epidemic by Pamela Weintraub (Author)) - Eye-opening account of the politics and corruption preventing advances in Lyme research
WHY CAN’T I GET BETTER, by Richard Horowitz, MD) - Detailed explanation of the challenges of tick-borne disease.
HOW CAN I GET BETTER?: An Action Plan for Treating Resistant Lyme & Chronic Disease Paperback – by Richard Horowitz, MD - Follow-up to
CHRONIC: The Hidden Cause of the Autoimmune Pandemic and How to Get Healthy Again Hardcover by Steven Phillips MD and Dana Parish
TOXIC: Heal Your Body from Mold Toxicity, Lyme Disease, Multiple Chemical Sensitivities, and Chronic Environmental Illness Paperback by Neil Nathan
RECOVERY FROM LYME DISEASE: The Integrative Medicine Guide to Diagnosing and Treating Tick-Borne Illness Paperback – March 21, 2023 by Daniel A. Kinderlehrer MD, Joseph J. Burrascano Jr. MD (Foreword)
HEALING LYME: Natural Healing of Lyme Borreliosis and the Coinfections Chlamydia and Spotted Fever Rickettsiosis by Stephen Harrod Buhner
BITTEN: The Secret History of Lyme Disease and Biological Weapons, by Kris Newby
WHEN YOUR CHILD HAS LYME DISESE: A Parent's Survival Guide by Sandra K. Berenbaum, LCSW, BCD, and Dorothy Kupcha Leland; foreword by Richard Horowitz, MD
LYME: THE FIRST EPIDEMIC OF CLIMATE CHANGE, by author and award-winning investigative journalist Mary Beth Pfeiffer
IN THE CRUCIBLE OF CHRONIC LYME DISEASE by Kenneth B. Liegner M.D
Lyme Disease: The Basics Free PDF of book. Published by the Lyme Disease Association of Southeastern Pennsylvania.
ARTICLES
Arrogance and Ignorance: A Catastrophe for Lyme Sufferers by Dana Parish – Huffington Post
Where CDC Guidelines Fail, Leading Lyme Doctor Succeeds (Part 1) by Dana Parish, interview with Steven Phillips MD
Where IDSA Guidelines Fail, Leading Lyme Doctor Succeeds (Part II) by Dana Parish, interview with Steven Phillips MD
IDSA written testimony by Steven Phillips MD 2009
Yolanda Foster’s speech about Lyme disease.
GRANTS/ FINANCIAL AID
LivLyme Foundation Grant Program Application for Financial Funding for a Child with Lyme Disease (ages 21 and under). Applications for the 2024 award year will close on Tuesday, October 31, 2023.
LymeLight Foundation- The Foundation awards grants to eligible children and young adults through 25 years of age.
The Lyme Disease Association’s LymeAid4Kids program was developed when internationally acclaimed author Amy Tan, herself a Lyme patient, approached the LDA, asking us to help children who might have Lyme disease. It can provide up to $1,000 toward diagnosis and/or treatment for Lyme & other tick-borne diseases and is available through any treating physician nationwide. Click here for application
FILMS
THE QUIET EPIDEMIC: THE BREAKING STORY ABOUT THE REAL IMPACT OF A LONG-IGNORED EPIDEMIC:
Trailer streaming May 16; Screenings are being held throughout the month of May
After years of living with mysterious symptoms,a young girl from Brooklyn and a Duke University scientist are diagnosed with a disease said to not exist: Chronic Lyme disease. The Quiet Epidemic follows their search for answers, which lands them in the middle of a vicious medical debate. What begins as a patient story evolves into an investigation into the history of Lyme disease, dating back to its discovery in 1975. A paper trail of suppressed scientific research, and buried documents reveal why ticks—and the diseases they carry—have been allowed to spread around the globe.
UNDER OUR SKIN: THE UNTOLD STORY OF LYME DISEASE
A chilling tale of microbes, medicine, and money, this Oscar-shortlisted film has changed the landscape of the Lyme epidemic, bringing unprecedented awareness in an engaging and accessible way. The definitive record of the Lyme controversy, UNDER OUR SKIN, exposes a hidden story of medical and scientific malfeasance and neglect. As official case numbers explode and hundreds of thousands of people around the world go undiagnosed or misdiagnosed, the film is as relevant and timely as ever.
The newly released Director's Cut includes 15 minutes of restored footage, re-edited scenes, and character updates. (2008-2014, 100 min.): //underourskin.com/screening/
SUPPORT GROUPS
U.S. National Lyme Disease Support Groups
Lymeparents online support group
RESOURCES OUTSIDE OF THE US
Read more about my family’s journey to find answers.
If you’re wondering why I write about Lyme disease and chronic illness:
I’m a patient advocate with the Center for Lyme Action
I’ve spent six years researching the medical literature for Lyme and vector-borne diseases.
I’ve worked with leading Lyme physicians.
I’ve lived with Lyme disease for thirty years.
I’m a mother to a child with Lyme disease.
Look for my next article, Prevention Is The Key To Avoiding Lyme Disease, later this week.
Wow, Great Compilation of Info